United For Faye!

Day +8  -- After some effort and coordination (and secrecy) Faye's competitive soccer club amassed yesterday evening on their practice fields and took photos to surprise Faye with a most amazing and awesome display of love and support.  Faye was absolutely blown away and cheered to see the slideshow of photos.  Many thanks to Heidi, Sean, John, Tito, Tim and the whole club, such a great group of players and coaches, and such a fantastic show of support.

The soccer event reminded me of another amazing show of team support: over the summer Faye's swim team organized and held a 'swim-a-thon' in Faye's honor to raise funds and show their support. I didn't blog often over the summer but last nights event again reminded me how very lucky and grateful we are to be part of such a loving and generous community.

We had a super long and super miserable night last night.  Faye has had ongoing stomach pain for several days now but late last night she also started a fever. So the Dr. doubled up on Faye's 'broad spectrum' antibiotics, and in the middle of the night  --of course in the middle of the night-- and with a fever of 103 we bundled Faye in a wheelchair and wheeled our way down to radiology for xrays.  The great news is that the xrays showed no sign of typhlitis. After the xray expedition we got all settled back in bed when Faye discovered that her portable heating pad had burst and the filling that was a strange chemical liquid-crystallizing-into-solid had seeped all over her bedding and jammies.  We called the nurse back, de-accessed Faye's port and commenced to cleaning.  The stuff was everywhere and the cleanup was no small chore.

Speaking of chores, getting through this stage of the process is arduous.  Each day of waiting for Faye's counts to start rising is an eternity. Crossing off one day at a time here. ~L