Friday, August 17, 2012

With all of the advancments in communication it's amazing to me how often it can still be so slow and unreliable (and frustrating).  It has been a real battle trying to get Faye's BMT process in place and confirmed.  Our CBCI Oncologist finally spoke directly with our BMT Oncologist (Faye will do the BMT inpatient at Children's) and they've established agreeable dates and times:  Faye will start injections on 8/30, collection of stem cells will take place from 9/4 until they have enough (probably through 9/7), she will have tests (cardio, echo, ultrasound, PET/CT, etc.) the week of 9/10, then we will check in to the Hospital on 9/26 to begin 7 days of chemo followed directly by transplant on October 3.  We expect to be in the hospital for 4 to 6 weeks of recovery.  Faye will miss all of her first semester but we expect that, with a smooth recovery, she will be able to re-join classes after semester break.  We spent several hours with Creek counselors, the Vice Principal, Home/Hospital district coordinators, teachers and our new Home/Hospital Tutor, Karl Mimmack (!Yay Karl!!) and with the magic of online classes and Skype we have an outline that just might allow Faye to graduate on time.  But.  It really does take a village and we continue to humbly bow in gratitude on a daily basis (not at all a bad habit to be into).   ~L