Day 19  --  We had a busy day yesterday packing and going home (yahoo!).  A home health delivery guy came in the afternoon and dropped off six large cardboard boxes of supplies, then a nurse came in the evening and spent almost three hours reviewing the IV/TPN Protocol, she was a gem but still I wished she would leave already.  She's coming back this evening to review everything one more time before leaving us on our own...  Faye did not get a pole but a backpack with a pump that holds her IV fluids - and dang it we may have left the hospital but the beeping pumps have followed us home(!).  Faye slept through the night but had her usual icky/nauseous episode this morning, then fell back to sleep once the meds kicked back in.  Still not much in the way of 'food by mouth' a nibble here or there which sometimes stays down.  ANC and wbc have been erratic as they ease Faye from the GCSF (a medicine that stimulates bone marrow).  When her counts stay relatively steady on their own they will look into removing the Broviac.  In the mean time it's a lot of work flushing it daily, keeping it clean and changing the dressing.  We put up a dry erase board and dug out the old Monday to Sunday pill box to try to help keep track of Faye's meds - it is still very confusing though.  Faye's first clinic visit is tomorrow morning and I'm actually relieved they'll be keeping close track of her progress.  The count down now is to get rid of TPN, then the Broviac, then day +100 when more of the restrictions should be lifted and Faye can possibly start back to school, go to restaurants, movies, malls, etc.  She will have to wait til next year to catch up on corn mazes and pumpkin patches!  ~L