Friday, March 29, 2013


177 days post transplant(!) and we have phenomenal news:  a clear scan!!!  Boy Howdy!!!

Two days ago Faye had her first PET/CT scans -since transplant- and I don't need to attempt to articulate how stressful it has been for us.  How in the heck a person can be so exhausted/dragging and yet so elated/floating is mind boggling -but that pretty much sums up how I feel right now. I don't know how long it will take to get back to normal, I'm thinking this might be the new normal and that from now on we will be living and breathing from scan to scan.

When we got the results Wednesday we had an amazing night of screaming and crying at the Walker household; diametrically opposite the screaming and crying that took place almost one year ago.  Faye is still recovering from the steroids, has more complications from the pneumonitis (low PFT and spots on her lungs), her C cells/T cells (immunity) are still very low but wow we sure can deal with that news.  She will have more tests in 6 weeks and in the mean time she is not permitted to go back to school and she will need to continue her meds and mask wearing... Like I say, we sure can deal with all of that, whew!

More bright news - Faye is still working diligently to graduate but this weekend she is finally taking a short break, a short 'spring break', to travel with friends!  She can't fly but they are driving to balmy (we hope) AZ - the perfect respite!  Happy Spring ya'all and if you've not registered for the 'DAM Cancer Run' do it now! Hope to see you all there!!  ~Lolly

Tuesday, March 19, 2013

Lots of days since transplant and Faye is officially transferred from 'BMT Oncology' back to regular 'Oncology'.  She is not back in class yet but she has a scan coming up at the end of the month and hopefully her Dr. will give her a 'thumbs up' on most regular activity.  Re-joining classes at this point might be more disruptive than it's worth but it will be nice for Faye to be able to make that decision on her own.  She's very busy catching back up on second semester work as her first semester work spilled well over into second thereby setting back her 2nd semester efforts.  Faye was accepted to CU and is planning away, applying for scholarships and working very hard to graduate on time.

On another note we are also excited to be planning the 2013 Dam Cancer Run.  It was so much fun last year and  it promises to be even more fun this year (and we hope the weather cooperates again)!  If you are interested in participating be sure to sign up online for discounted registration, guarantee your tshirt and other fun glow in the dark type stuff:  http://www.playstrongcolorado.org/damregistration.   Hope to see every one there!  ~L