Friday, March 29, 2013


177 days post transplant(!) and we have phenomenal news:  a clear scan!!!  Boy Howdy!!!

Two days ago Faye had her first PET/CT scans -since transplant- and I don't need to attempt to articulate how stressful it has been for us.  How in the heck a person can be so exhausted/dragging and yet so elated/floating is mind boggling -but that pretty much sums up how I feel right now. I don't know how long it will take to get back to normal, I'm thinking this might be the new normal and that from now on we will be living and breathing from scan to scan.

When we got the results Wednesday we had an amazing night of screaming and crying at the Walker household; diametrically opposite the screaming and crying that took place almost one year ago.  Faye is still recovering from the steroids, has more complications from the pneumonitis (low PFT and spots on her lungs), her C cells/T cells (immunity) are still very low but wow we sure can deal with that news.  She will have more tests in 6 weeks and in the mean time she is not permitted to go back to school and she will need to continue her meds and mask wearing... Like I say, we sure can deal with all of that, whew!

More bright news - Faye is still working diligently to graduate but this weekend she is finally taking a short break, a short 'spring break', to travel with friends!  She can't fly but they are driving to balmy (we hope) AZ - the perfect respite!  Happy Spring ya'all and if you've not registered for the 'DAM Cancer Run' do it now! Hope to see you all there!!  ~Lolly

1 comment:

  1. Great news! Our thoughts & prayers continue to be with you. Bet there is a Trader Joe's in AZ. Lots of love from Elaine & Emma

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